Care of vulnerable peopleJEAN VANIER
Thank you for the opportunity to reflect with you on the care of vulnerable people.
For the past 46 years I have lived with people intellectual disabilities. I have listened to them and learned from them. These beautiful men and women have much to teach us about vulnerability, about caring, and about the ways of the heart. As individuals and as a population, they have a lived history of suffering, of being rejected and hidden away; away from the mainstream, away from power, away from belonging. Their obvious physical impairments, their openness of heart and their cry of need for relationship have gently invited me to reflect on my own impairments, fear of openness and need for relationship. They have been my teachers in the school of the wise and tender heart.
What I have learned from them, in their humility and their humiliations, is that we are all vulnerable people. Each one of us is important, especially the weakest among us. In our vulnerability we are easily hurtł and we have elaborate systems of self protection which keep us from being open with each other. We need each other, and yet we are deeply afraid of this need. Our fear estranges us from our own weakness, and keeps us from exercising the fullness of our humanity in caring for each other, individually and as a society.
I have just celebrated my 82nd birthday. As well as a sense of deep gratitude for my life, there are losses. Over the past two years I have significantly curtailed my long distance travel. I grow tired more easily, and need to nap with regularity. However I experience great joy as those whom I have welcomed over the years, now care for me. They have spared me for the last decade from doing the dishes! More recently theyobserve my physical fatigue, patting me on the head with great tenderness saying: "Poor old man". My vulnerability is cherished by them, as theirs has been by me, and this helps me to welcome mine in its newest incarnation, old age with its joys but also with its various indignities.
Each of us is fragile, with deep needs for both love and a sense of belonging. We begin and end our lives vulnerable and dependent, requiring others to care for us. Throughout our lives there are other moments of fragility and dependence. In our states of dependence, our need cries out for attention and care. If this need is well received, it calls forth the powers of love in others, and creates unity around us, the gifts of the vulnerable to our world. If our cry and our need are unmet, we remain alone and in anguish.
The vulnerable people whom your committee is called to reflect about caring for, are often in a precarious state, mentally or physically or both. They are often in anguish. The old, those living with illness and perhaps near death, those in depression and with a sense of despair, those living with disabilities; these are all people living in a most fragile state. The danger in our culture of productivity and achievement is that we easily dismiss and ignore as unproductive the gifts and the beauty of our most vulnerable members, and we do so at our own peril, dehumanizing ourselves.
Of course we must also be competent professionals, clear about our skills and limits and willing to consult widely about those we serve. However, there is grave danger here that our competence becomes the goal, serving excellence rather than people. When faced with the vulnerability or anguish of another, the forces of anguish within us can be awakened. Without proper support, we quickly protect our own vulnerable humanity. We have many wonderful and creative ways to do this, as many ways as there are people. We may use the compulsion to work to meet the unending need for service, putting the accomplishment of the work above the person cared for. We of course need to be clear about our boundaries. However, citing the need for maintaining professional boundaries, we can eternally hide ourselves behind professional distance, losing the necessary mutuality that is both the soil and fruit of humane service.
A doctor told me of visiting a colleague in a hospital. The patient was herself a doctor and most importantly a young mother. She had been acutely ill, was in the intensive care unit for 14 days, and had almost died. She was then transferred to the general ward, where she was terrified that she would die, leaving her young children motherless. For 2 weeks someone had been at her side every minute, but now a nurse came by intermittently, taking her blood pressure and pulse only every few hours instead of continuously. The patient had young children and became terrified that she would die, leaving them without a mother. When her friend and colleague visited her, she sat on the bed, took the patient's hand in hers and gently asked "How are you?" "This is the first time someone has touched me in a nonmedical and humane way since I arrived in the hospital 3 weeks ago". Some of the ways we must interact with vulnerable people, listening for their fears, touching them with tenderness, are not very complicated, though obviously others are much more so.
What then is it we need to provide for those whom we ask to care for vulnerable populations? What training and support do they require? Firstly, we need to cultivate a culture of care where the importance of each person, care givers and recipients, is the primary value. Their histories, medical and personal, are important here, as the relationship begins. We need to know a little bit about the people we are treating; who they are, what are their likes and dislikes, their hopes and dreams. The wellbeing of each individual should be upheld, over efficiency, scheduling, meetings or even standards of excellence, and to do so requires a shift in focus from the job-to-be-done to the-wellbeing-of-the-person-served. The needs of the most fragile individual should be given priority, and this in itself will foster unity and transformation.
We need to encourage caregivers to enter into appropriate but real relationships with those they serve, relationships which both validate the client and transform the caregiver. We must help carers to recognize and welcome their own weakness. We need to create places of safety where caregivers can share with each other the anguish which rises up within from time to time, evoked by a client's anguish. They need also to be able to share together their feelings of helplessness, inability, anger, frustration, violence and grief. These feelings are within each of us, and sharing them constructively as a group will encourage growth towards unity and maturity in the individual and within the group, and will help to prevent burnout.
Once I was invited to talk to military officers in training, and not sure how exactly I could advise them, I showed them a short movie about l'Arche, the community where I live. The movie talked about welcoming our own weaknesses, and the beauty of human frailty. Afterwards I ate lunch with the generals who had invited me to speak, and I felt a little embarrassed by the content of my talk. "Do not apologize", said the senior General. "Why do soldiers torture their prisoners? It happens when they have not understood their own limits or welcomed their own weakness."
Let us look for ways, in the care of our vulnerable populations, that we can welcome, honour and celebrate weakness, theirs and our own. Let us give our most vulnerable members a central place in our hospitals, care plans, old peoples' homes, nursing homes, psychiatric facilities, and in our own homes.
Let us acknowledge that this task is profoundly counter cultural in a society based on competition and the need to win, so let us be prepared for the struggle this implies, individually and as a society. Let our professionalism also model openness to and welcome of vulnerability, in ourselves and others. In this way we will humanize our services and ourselves, and our communities will be enriched.
Jean Vanier. "Care of vulnerable people." presentation to The Canadian Parliamentary Committee on Palliative and Compassionate Care (October 15, 2010).
Reprinted with permission of L'Arche Canada.
Please visit L'Arche Canada's website dedicated to the theme of aging and disability here.
Jean Vanier, is the founder of the international movement of L'Arche communities, where people who have developmental disabilities and the friends who assist them create homes and share life together. Distressed by the plight of people with developmental disabilities, in 1964 he welcomed two men from an institution to live with him in a little home he called “L'Arche,” after Noah's ark in the French village of Trosly Breuil. L'Arche grew quickly as this new way of sharing life together in community with people who would otherwise be shut away in institutions attracted many young people. And Vanier himself began traveling and speaking about his own life-changing experience of coming to know people with developmental disabilities. Today, there are 130 L'Arche communities in 30 countries on six continents. Jean Vanier is the author of many books, including Our Life Together: A Memoir in Letters, Becoming Human, From Brokenness to Community, Finding Peace, Seeing Beyond Depression, and Jesus, The Gift of Love.
Copyright © 2010 Jean Vanier
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